dino
04-13-2008, 11:24 AM
http://i130.photobucket.com/albums/p251/dino_042/myson.gif
While looking through a PR syndrome site i came across this i obviously have changed a lot around to a more light hearted way of how our lives are living with our darling wee boy both songs here lyrics mean a lot to me fzZ-y5yt8t8http://i130.photobucket.com/albums/p251/dino_042/isitvincent.jpg
You know you have a child with special needs when...
You compare A/E instead of supermarkets etc
You compare your child's oxygen saturations.
You view toys as "therapy". :)
You don't take a new day for granted.
You teach your child HOW to pull things out of the cupboard, off the bookcases, and that feeding the dog from the table is fun. :lol:
The clothes your child wore last year still fit him this year
Everything is an educational opportunity instead of just having
plain old fun.
You cheer instead of getting angry when they throw milk or juice all over you
while sitting at the dinner table (that's speech therapy), smear
ketchup all over their high chair (that's OT), or throw their toys :o
You fired at least 3 pediatricians and can teach your family doctor a
thing or two.
We had to take turns to sleep on the couch every night for 2 years as when you were younger our house had no central heating and gas fire downstairs was only source of heat
You can name at least 3 genes on chromosome 21. (You really
know your toast if you can spell the full names correctly)
You have been told you are "in denial" by at least 3 medical or
therapy professionals. This makes you laugh! especially after two got it wrong and told you your son had cf then another he has severe heart defect that was life threatining only to be told two days later they were only registrars and fucked up <_<
You have that incredible sinking feeling that you've forgotten
SOMETHING on those few days that you don't have some sort of
appointment somewhere!
We never complained when you took 3 hours to suckle just a few ounces of milk from a lambs teat
You get irritated when friends with healthy kids complain about ONE
sleepless night when they're child is ill!
Your vocabulary consists of all the letters OT, PT, SP, ASD, VSD,
IFSP, etc.
Daily nebuliser treatments that once scared me now have become second nature to all other activities
Having to get up several times a night to try and turn you on your side to stop your tounge slipping back
You keep your appointment with the specialist even though a
tropical storm is raging because you just want to get this one over
with.....you waited 8 months to get it.....and besides, no one else will
be there! :lol:
Fighting and wrestling with siblings is considered healthy
Speech therapy occurs in the tub with a sibling.
When there nineteen and still doubly incontinent but that dosent bother you your just glad he is alive
When the Doctors/Specialist/Hospitals etc. all know you by your
name without referring to your chart. :)
You keep a daily growth chart.
You calculate monthly statistics for the number of times your child
vomits, and did this for more then one year.
You phone all your friends when your child sits up for the first time,
at age five
With a big smile on your face you tell a stranger that your six year
old just started walking last week.
His medical file is several inches thick and growing.
omg i could go on and on lol but i will stop now ffs before i bore you all to tears lol :lol:
You have a new belief.....that angels live with us on earth
for you Lee our special son 2MpPoQhHX8ghttp://i130.photobucket.com/albums/p251/dino_042/teddybearsblueglobe1.gif
While looking through a PR syndrome site i came across this i obviously have changed a lot around to a more light hearted way of how our lives are living with our darling wee boy both songs here lyrics mean a lot to me fzZ-y5yt8t8http://i130.photobucket.com/albums/p251/dino_042/isitvincent.jpg
You know you have a child with special needs when...
You compare A/E instead of supermarkets etc
You compare your child's oxygen saturations.
You view toys as "therapy". :)
You don't take a new day for granted.
You teach your child HOW to pull things out of the cupboard, off the bookcases, and that feeding the dog from the table is fun. :lol:
The clothes your child wore last year still fit him this year
Everything is an educational opportunity instead of just having
plain old fun.
You cheer instead of getting angry when they throw milk or juice all over you
while sitting at the dinner table (that's speech therapy), smear
ketchup all over their high chair (that's OT), or throw their toys :o
You fired at least 3 pediatricians and can teach your family doctor a
thing or two.
We had to take turns to sleep on the couch every night for 2 years as when you were younger our house had no central heating and gas fire downstairs was only source of heat
You can name at least 3 genes on chromosome 21. (You really
know your toast if you can spell the full names correctly)
You have been told you are "in denial" by at least 3 medical or
therapy professionals. This makes you laugh! especially after two got it wrong and told you your son had cf then another he has severe heart defect that was life threatining only to be told two days later they were only registrars and fucked up <_<
You have that incredible sinking feeling that you've forgotten
SOMETHING on those few days that you don't have some sort of
appointment somewhere!
We never complained when you took 3 hours to suckle just a few ounces of milk from a lambs teat
You get irritated when friends with healthy kids complain about ONE
sleepless night when they're child is ill!
Your vocabulary consists of all the letters OT, PT, SP, ASD, VSD,
IFSP, etc.
Daily nebuliser treatments that once scared me now have become second nature to all other activities
Having to get up several times a night to try and turn you on your side to stop your tounge slipping back
You keep your appointment with the specialist even though a
tropical storm is raging because you just want to get this one over
with.....you waited 8 months to get it.....and besides, no one else will
be there! :lol:
Fighting and wrestling with siblings is considered healthy
Speech therapy occurs in the tub with a sibling.
When there nineteen and still doubly incontinent but that dosent bother you your just glad he is alive
When the Doctors/Specialist/Hospitals etc. all know you by your
name without referring to your chart. :)
You keep a daily growth chart.
You calculate monthly statistics for the number of times your child
vomits, and did this for more then one year.
You phone all your friends when your child sits up for the first time,
at age five
With a big smile on your face you tell a stranger that your six year
old just started walking last week.
His medical file is several inches thick and growing.
omg i could go on and on lol but i will stop now ffs before i bore you all to tears lol :lol:
You have a new belief.....that angels live with us on earth
for you Lee our special son 2MpPoQhHX8ghttp://i130.photobucket.com/albums/p251/dino_042/teddybearsblueglobe1.gif